An anonymous survey of patients living with systemic lupus, in the context of the COVID-19 pandemic. This study pertains to patients diagnosed with lupus, who are residents of France (including departments and regions overseas). Inclusion with be open from 15/11/2020 au 15/05/2021.
|The Scleroderma Patient-centered Intervention Network
The Scleroderma Patient-centered Intervention Network (SPIN) emerged from an international collaboration of health care providers, researchers, and patient organizations. Individuals and organizations involved in SPIN are working to develop, adapt and test new and existing programs that aim to help patients cope with their illness and manage their daily lives.
Establishment of an collaborative e-platform to identify and characterize functional deficits in patients with rare autoimmune diseases following stem cell or biotherapy « E-FORM INNOV »
COMPLETED STUDY – FINAL REPORT